11-year-old Adeline, was diagnosed with a rare and sometimes fatal genetic degenerative disorder called SMA PME . Only a few children have been diagnosed with this rare illness in France and the world. There is currently no treatment for the illness , but there is one hope: genetic therapy , which has already cured similar illnesses. I am joining this cause together with the non-profit organization, ASAP for Children to help support research. Thank you in advance for your generous donations and support which will help prolong the life of Adeline and the other children suffering from this illness!! Michael Kingston