I support ASAP for Children which is doing very important work. I decided to raise funds to finance their actions. Because, work is not only about work. My colleague Dennis has recently discovered his 11-year-old daughter Adeline is suffering from an orphan neurodegenerative disease: SMA PME. This disease, which affects only a few children around the world, causes muscle and neurological degeneration which will lead to his death before the end of adolescence if nothing is done. There is no cure for this disease to date, but there is hope: gene therapy, which is already curing similar diseases. We therefore embarked on a race against time to finance the research and development of a remedy for Adeline and the other children, by joining the association ASAP for Children. Help us advance research in gene therapy by making a donation to the association. Donations are donated by Alvarum. It is very easy and secure. Thank you for your support! Carole