by Réjean Demers for ASAP for Children

Dear friends,

The daughter of one of my work colleagues, Adeline, 11, was diagnosed with a rare neurodegenerative disorder called SMA PME. This disease, which affects only a few children around the world, causes muscle and neurological degeneration which lead to death before the end of adolescence if nothing is done.

There is currently no treatment for this illness
, but there is  one hope: genetic therapy, which has already cured similar illnesses. 

I am joining this cause together with the non-profit organization, ASAP for Children to help support research.

Thank you in advance for your generous donations and support which will help prolong the life of Adeline and the other children suffering from this illness.

Réjean Demers
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!!! COUREZ AVEC NOUS !!! La SMA-PME est une maladie rare, neurodégénérative, d'origine génétique qui touche les enfants. Il n'existe aucun traitement, l'espérance de vie ne dépasse pas l'adolescence. La solution : La thérapie Génique. Nous avons réussi à mobiliser les chercheurs. Un traitement est en cours de développement dans leurs laboratoires. Plus vite nous réunirons les financements, plus vite le traitement pourra sauver ces enfants. C'EST UNE COURSE POUR LA VIE, !!! COUREZ AVEC NOUS !!!