The daughter of one of my work colleagues, Adeline, 11, was diagnosed with a
rare neurodegenerative disorder called SMA PME. This disease, which affects only a few children around the world, causes muscle and neurological degeneration which lead to death before the end of adolescence if nothing is done.
There is currently no treatment for this illness, but there is
one hope: genetic therapy, which has already cured similar illnesses.
I am joining this cause together with the non-profit organization, ASAP for Children to help support research.
Thank you in advance for your generous donations and support which will help prolong the life of Adeline and the other children suffering from this illness.