Elise Johannessen's fundraising page

by Elise Johannessen for Association ELA

I really think that Association ELA (European Leukodystrophy Association) are doing a great job and I have decided to raise funds to help them perform their work. Leukodystrophies are a group of rare and relatively unknown genetic diseases, they need a lot of help in the fight.

I would greatly appreciate if you could help me in my fundraising efforts by making a donation to Association ELA or bringing awareness around my fundraising efforts. There are no small donations.

Donations are processed through Alvarum.
It is very easy and 100% secure.

Thank you for your help!
Elise Johannessen
Target
1%
So far, I've raised

 50

With help of people.
On my target of  5,000
Your donation goes to Association ELA.
Payments are 100% secure.
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Nu Skin - Force For Good
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Association ELA

Fondée en 1992 par Guy ALBA, l'Association Européenne contre les Leucodystrophies (ELA) regroupe des familles qui se mobilisent pour vaincre ces maladies génétiques rares qui détruisent la myéline (la gaine des nerfs) du système nerveux. Chaque semaine en France, 3 à 6 enfants naissent atteints de ces pathologies qui engendrent des situations de handicap très lourd et entraînent progressivement la perte de toutes les fonctions vitales : l'ouïe, la vue, la locomotion.