Cork City Marathon for Joey

by John Dennigan for Association ELA


About my fundraiser

Irish Examiner Cork City Marathon 2015,

My name is John Dennigan and I live in Midleton Co.Cork. I'm married to Dee and have three children, Caolán, Odhran and Moya. I have three sisters, Siobhan, Sharon and Colette. Colette lives in Grenoble in France and this run is in aid of her son Joey.

This is just a short little piece to give you an insight into what the Cork City Marathon for Joey is about.

Joey Swift is my nephew and godson and has a condition known as Leukodystrophy. The strand of Leukodystrophy that Joey has is called Aicardi Goutieres Syndrome. I wanted to do something for Joey and his parents Colette (my sister), Matt and Sophie (Joey's sister). I have completed a number of half marathons over the past three years and I decided around November that I would go the extra mile (excuse the pun) and run a full marathon. I chose the Cork City Marathon to run for Joey and ELA because firstly it's my home county and secondly in the Cork City Marathon there are opportunities for people to run in the half marathon, be part of a relay team or go the whole hog and do the full. We already have lots of people who have committed to running on the day for this great cause. People from Fermoy (our home town), Castlebar (Dee's home town) and Midleton have all decided to take part. The Cork City Marathon is taking place on the 1st June 2015.

ELA stands for European Leukodystrophy Association and are great support for the people (children and adults) and families who have been affected by this illness and they have also contributed hugely to great progress being made in medical research. It's a charity that means a huge amount to Colette and Matt. The run for Joey and ELA has two parts a) to raise awareness for Joey and Leukodystrohy and b) to raise some funds for ELA.

It's a chance for people to get involved in a very worthy cause whether that is to donate a euro or more, to run part of the marathon or to come out and support on the day. Everything helps and it's our chance to show Joey that there are lots of people who love him and that he and his family are in our thoughts every day.

Thanks a mill.

John Dennigan
PS: All donations are sent to ELA via Alvarum (this site) and it's 100% secure.
PSS: You can go to Joey's blog on: to find out a bit more about his story and ELA

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Association ELA
Fondée en 1992 par Guy ALBA, l'Association Européenne contre les Leucodystrophies (ELA) regroupe des familles qui se mobilisent pour vaincre ces maladies génétiques rares qui détruisent la myéline (la gaine des nerfs) du système nerveux. Chaque semaine en France, 3 à 6 enfants naissent atteints de ces pathologies qui engendrent des situations de handicap très lourd et entraînent progressivement la perte de toutes les fonctions vitales : l'ouïe, la vue, la locomotion