Your donation goes to Association Lesch-Nyhan Action (LNA).
Payments are 100% secure.
Kevin Childs fundraising page
by Kevin Childs for Association Lesch-Nyhan Action (LNA)
(To translate pages fully into English - click 'Francais' in the top righthand corner of each page and chose the 'English' option)
In June 2011, friends and I will be climbing the Three Peaks. A real challenge! I would like to dedicate our efforts towards raising research funds for a terrible disease; Lesch-Nyhan Syndrome (LNS) because my young nephew, Nathan, has been diagnosed with this condition. Nathan and his parents have their own challenges this brings every day.
Lesch-Nyhan Syndrome is a very rare genetic condition for which there is currently no cure or treatment. Boys with LNS suffer weak muscle tone (similar to Cerebral Palsy), serious kidney problems, they are unable to develop normally and have a compulsion to self harm. Lesch-Nyhan Syndrome is very rare: it affects as few as one in two million live births. There are only 25 known childen with the disease in England. Currently the long term prognosis for boys with Lesch-Nyhan Syndrome is very poor.
However, there is a small glimmer of hope and Nathan's family are commited to raising research funds for the French association "Lesch-Nyhan Action"; a small organisation with very little overhead costs who are predominately dependant on gifts from individuals. Research is vital to help children like Nathan and recent studies are giving new insights into LNS and indicating exciting potential links to more mainstream neurological disorders such as Alzheimer's and Parkinson's. A friend and colleague has already taken on the challenge of the Paris Marathon 2011 for the charity and this is our next effort to support LNA.
Any donation you feel you are able to make is highly appreciated and could make a positive difference to the life of a much loved young child.
Thank you for your support.
Kevin Childs
(For information - The collection is taking place on this Aiderdonner site so the funds can most cost effectively be donated to the French Charity.
Please note you will be donating in Euros.
The exchange rate is approximately 1euro = 85p and some banks may charge a small commission for the card process. It is, however, quite straightforward, and rather fun to donate in a foreign currency!
When completing the form overleaf it might help to know United Kingdom is Royaume Uni in French
Thank you so much - Kevin Childs)
In June 2011, friends and I will be climbing the Three Peaks. A real challenge! I would like to dedicate our efforts towards raising research funds for a terrible disease; Lesch-Nyhan Syndrome (LNS) because my young nephew, Nathan, has been diagnosed with this condition. Nathan and his parents have their own challenges this brings every day.
Lesch-Nyhan Syndrome is a very rare genetic condition for which there is currently no cure or treatment. Boys with LNS suffer weak muscle tone (similar to Cerebral Palsy), serious kidney problems, they are unable to develop normally and have a compulsion to self harm. Lesch-Nyhan Syndrome is very rare: it affects as few as one in two million live births. There are only 25 known childen with the disease in England. Currently the long term prognosis for boys with Lesch-Nyhan Syndrome is very poor.
However, there is a small glimmer of hope and Nathan's family are commited to raising research funds for the French association "Lesch-Nyhan Action"; a small organisation with very little overhead costs who are predominately dependant on gifts from individuals. Research is vital to help children like Nathan and recent studies are giving new insights into LNS and indicating exciting potential links to more mainstream neurological disorders such as Alzheimer's and Parkinson's. A friend and colleague has already taken on the challenge of the Paris Marathon 2011 for the charity and this is our next effort to support LNA.
Any donation you feel you are able to make is highly appreciated and could make a positive difference to the life of a much loved young child.
Thank you for your support.
Kevin Childs
(For information - The collection is taking place on this Aiderdonner site so the funds can most cost effectively be donated to the French Charity.
Please note you will be donating in Euros.
The exchange rate is approximately 1euro = 85p and some banks may charge a small commission for the card process. It is, however, quite straightforward, and rather fun to donate in a foreign currency!
When completing the form overleaf it might help to know United Kingdom is Royaume Uni in French
Thank you so much - Kevin Childs)
Target
38%
So far, I've raised
€ 1,885
With help of people.
On my target of € 5,000
On my target of € 5,000
Association Lesch-Nyhan Action (LNA)
L'Association Française Lesch-Nyhan Action Maladie Génétique (www.lesch-nyhan-action.org), créée en 1995, regroupe des familles touchées par la maladie de Lesch-Nyhan, ainsi que des sympathisants. Cette maladie métabolique d'origine génétique fait partie des nombreuses maladies orphelines méconnues et tardivement diagnostiquées. L'association est fortement impliquée dans des programmes de recherche en cours.
